Blogroll

HealthDataRights.org is about the power of collective wisdom. This blogroll represents the people who endorse the Declaration of Health Data Rights, and want their voices to be heard on the topic. Let's hear what you have to say.

  1. Taking Control of Your Personal Health Care

    Pdazzler posted by Pdazzler
    December 3, 2009

    Pdazzler supports the effort to have all medical information in the complete control, including access, of the patient.

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  2. Call to Action: Change the rules and get your labs

    HealthDataRights Action posted by HealthDataRights
    October 15, 2009

    We have an timely chance to put HealthDataRights into action! On Tuesday, the Health IT Policy Committee at ONC is holding a ...

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  3. Sign and Circulate Jamie Heywood’s Declaration of Health Data Rights Petition Today

    Addi & Cassi Hempel Blog posted by Chris Hempel
    September 26, 2009

    Medical Records Nightmare: Our 5 year old identical twins girls Addi and Cassi have Niemann Pick Type C, a fatal cholesterol ...

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  4. Health Data Rights

    SQLBlog posted by Kevin Kline
    September 25, 2009

    I describe my opinion about the condition of health care IT and encourage my readers to engage in health data activism, by de...

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  5. Health Data Bill of Rights endorsed by DataPortability Project

    Knowledge Management News posted by Brad Hoyt
    July 28, 2009

    DataPortability officially endorses the Health Data Bill of Rights.

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  6. Health Data Rights Moves Health Care into the 21st Century

    DietsInReview.com Diet Blog posted by DietsInReview.com
    July 11, 2009

    DietsInReview.com introduces Health Data Rights and the Declaration to its readers, expressing our support and continuing the...

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  7. And Now for Something Completely Different

    The Sticky Truth posted by Gregory Park
    July 6, 2009

    Healthcare viewpoints from a 25 year HIT vet

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  8. Improving the portability between provider and patient

    Anthony Broad-Crawford posted by Anthony Broad-Crawford
    July 6, 2009

    Up until now the discussion within healthcare around patient data has been focused primarily on digital format and increasing...

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  9. Who Controls My Personal Health Data

    Live Fit Blog posted by Greg Hayes
    July 2, 2009

    The subject of personal health and information is often overlooked. For we, as consumers of healthcare, to be actively invol...

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  10. Dx: Revolting. Rx: Revolt.

    e-Patients.net posted by e-Patient Dave
    July 1, 2009

    Your right to your data has gotten crushed under regulations that put unresponsive, unconcerned, unmotivated bureaucrats’ nee...

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  11. My Right to Data, Happiness, and a Long and Healthy Life

    e-patients.net posted by Sarah Greene
    June 26, 2009

    For all the talk of the evidence-based approach to medicine, we are beginning to embrace the power of personalized medicine, ...

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  12. My health care records: My property

    http://survivethejourney.blogspot.com posted by Robin S
    June 25, 2009

    I want the right to access and amend my health care records. I don’t want to be forced to access or amend it. I want the rig...

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  13. Declare Your Rights to YOUR Health Data

    Accelerating Adoption of Healthcare IT posted by Nick van Terheyden, MD
    June 25, 2009

    It's your data and your record. Its' the end of the secret codes embedded in your medical record which is a good thing. Meanw...

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  14. A Declaration of Health Data Rights: Can't argue with it, but it's only a first step

    HealthBlawg :: David Harlow's Health Care Law Blog posted by David Harlow
    June 24, 2009

    The Declaration is just a first step. Providers who agree with it and its corollaries should amend their policies (e.g., rev...

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  15. Data to the People

    Greg Park's Blog posted by Gregory Park
    June 24, 2009

    Why RHIO or NHIN?

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  16. Give Me My Data!

    PolicyBeta (CDT) posted by Sheel Pandya
    June 24, 2009

    Why is gaining access to one’s health data such a problem? Still too many patients and providers do not know that this right...

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  17. My body, my data

    Good Morning Silicon Valley posted by John Murrell
    June 23, 2009

    You can bet that if Steve Jobs asked for all his medical records and treatment history to be assembled into a convenient form...

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  18. Information Fundamental to Knowledge

    Chilmark Research posted by John Moore
    June 23, 2009

    Without easy and ready access to personal health information, consumers will not gain the knowledge needed to improve their h...

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  19. Our Health Data Rights

    eDocAmerica Blog posted by Charlie Smith
    June 23, 2009

    review of health data rights document with links

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  20. HealthDataRights - Beta Version

    Release 0.9 posted by Esther Dyson
    June 23, 2009

    "What needs to be changed [for me to] have my records? Why can't I own my own records?" In theory, nothing needs to change...

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  21. Our bodies, our health information, ourselves - A Declaration of Health Data Rights

    Health Populi posted by Jane Sarasohn-Kahn
    June 23, 2009

    Death and taxes are certain; access to your personal health data is less so.

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  22. Health Data Rights

    The Stupid Cancer Blog posted by Matthew Zachary
    June 23, 2009

    We have the right to access all health data about ourselves, so we can make the most effective health decisions using the res...

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  23. A Declaration of Health Data Rights

    The Health Care Blog posted by Matthew Holt
    June 22, 2009

    THCB & Health 2.0 are happy to be a small part of a very important declaration, made today by a mix of patients, physicians, ...

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  24. Support the Federal Laws That Allow Access for Patients

    The Medical Quack posted by Barbara Duck
    June 22, 2009

    You will find me on the list too. There are many companies such as Microsoft, Google, Navigenics, Faster Cures and more on t...

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  25. nobody owns your data but you

    dietrich posted by dietrich stephan
    June 22, 2009

    Its your life and your health to control. The data elements encompassing your genetic code, your clinical data, your exposur...

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  26. Self-Evident

    Family Health Guy posted by Sean Nolan
    June 22, 2009

    If you've ever had to work through even a slightly complicated encounter with our health care system - you know what it's lik...

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  27. Just in time for July 4th, FasterCures signs the Declaration of Health Data Rights

    The FasterCures Blog posted by FasterCures
    June 22, 2009

    FasterCures is pleased to join with other organizations signing on to the Declaration of Health Data Rights, which state that...

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  28. We the Patient Want to Be Included in Meaningful Use

    Navigating Healthcare – Patient Safety and Personal Healthcare Management posted by Nick van Terheyden, MD
    June 22, 2009

    For 20 years I have been asking for my records. In the early days this was akin to heresy and my success at extracting copies...

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  29. A Dream of Reason

    The Health Care Blog posted by Brian Klepper and David Kibbe
    June 22, 2009

    A patient's right to have his/her own data is the spearpoint of a larger right to health care transparency information.

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  30. My right to my health data

    CoCreating Health - A Consumer Voice posted by Sherry Reynolds
    June 22, 2009

    People should have the right to full access of our healthcare data, to know the source of the data, and the right to share ou...

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