Endorsements

The individuals listed here have endorsed the Declaration of Health Data Rights either by submitting their endorsement via this website or by using the hashtag #myhealthdata on Twitter.

1392 endorsements. Add yours!

▲ sort by endorsement date

  1. Adam Bosworth
    Keas
    “Acknowledging these fundamental rights will transform health care with profound improvements in well being”
    8 months ago via HealthDataRights.org
  2. Jamie Heywood
    PatientsLikeMe
    “You cannot measure without data. "To measure is to know" -Archimedes. You have the right to know.”
    8 months ago via HealthDataRights.org
  3. David C. Kibbe
    “As physicians we need to supply patients with more than diagnoses and recommendations. Sharing patients' health data promotes engagement.”
    8 months ago via HealthDataRights.org
  4. Gilles Frydman
    ACOR
    “I own my health & of course I own #myhealthdata ! You too! Endorse the Declaration of Health Data Rights (http://tr.im/hdrights)”
    8 months ago via HealthDataRights.org
  5. Brian Klepper
    “Patients right to health information is the most fundamental part of health care transparency and one of the deepest solutions to the crisis”
    8 months ago via HealthDataRights.org
  6. Alan Greene
    DrGreene.com and A.D.A.M., Inc.
    “Having our health data is like having keys to the car: we move from passengers to drivers of our health & our healthcare system. Buckle up.”
    8 months ago via HealthDataRights.org
  7. Sarah Greene
    Journal of Participatory Medicine
    “To alienate [patients] from their own decision making is to change them into objects. –P.Freire, Pedagogy of the Oppressed”
    8 months ago via HealthDataRights.org
  8. Peter Neupert
    Microsoft Health
    8 months ago via HealthDataRights.org
  9. Matthew Holt
    Health 2.0 Conference
    8 months ago via HealthDataRights.org
  10. Esther Dyson
    EDventure
    “yes we can.....scan our own data!”
    8 months ago via HealthDataRights.org
  11. Anne Wojcicki
    23andMe
    “How can we make intelligent decisions about health care if we don't have our data? Patients & care givers need easy access to health data.”
    8 months ago via HealthDataRights.org
  12. Linda Avey
    23andMe
    8 months ago via HealthDataRights.org
  13. Tim O'Reilly
    O'Reilly Media
    “Statements of principle do matter. If we establish the underlying principle of open exchange, the marketplace can sort out the details.”
    8 months ago via HealthDataRights.org
  14. David Agus
    USC Center; Applied Molecular Medicine
    “Creating mobility and utility for health data will be game changing.”
    8 months ago via HealthDataRights.org
  15. Danny Sands
    Cisco
    “Healthcare is better when practiced as a partnership between patient and physician. How can you partner if you don't have access to data.”
    8 months ago via HealthDataRights.org
  16. Joe Lind
    PatientsLikeMe
    “RT @cindythroop: #myhealthdata belongs to me before it belongs to anyone else”
    8 months ago via HealthDataRights.org
  17. Lori Piscatelli Scanlon
    PatientsLikeMe
    8 months ago via HealthDataRights.org
  18. Jeremy Weiskotten
    PatientsLikeMe
    8 months ago via Twitter
  19. Teresa Graedon
    The People's Pharmacy
    8 months ago via HealthDataRights.org
  20. Joe Graedon
    The People's Pharmacy
    8 months ago via HealthDataRights.org
  21. Richard Smith
    Cases Journal
    “Important not just in the US but worldwide. Certainly important here in the UK.”
    8 months ago via HealthDataRights.org
  22. J. Marty Tenenbaum
    CollabRx
    “The future of healthcare is personalized and patient directed, and that future starts with free and open access to one's health data.”
    8 months ago via HealthDataRights.org
  23. Colin Evans
    Dossia
    “Dossia's goal is to empower individuals to change health & healthcare. Rights to health data are the foundation of that mission”
    8 months ago via HealthDataRights.org
  24. Sean Nolan
    Microsoft Health Solutions
    “This stuff really matters, and now is exactly the right time to be crystal clear about it. Fantastic!”
    8 months ago via HealthDataRights.org
  25. Faith McLellan
    8 months ago via HealthDataRights.org
  26. David S. Williams III
    PatientsLikeMe
    “And we're live! Declare your health data rights. #myhealthdata”
    8 months ago via Twitter
  27. Blackford Middleton, MD
    Partners HealthCare System, Inc.
    8 months ago via HealthDataRights.org
  28. e-Patient Dave deBronkart
    Society for Participatory Medicine
    “My post on the Declaration: http://is.gd/19GUX "These rights are as inalienable as the right to life itself. #myhealthdata”
    8 months ago via HealthDataRights.org
  29. Craig Stoltz
    Health journalist/social media adviser
    8 months ago via HealthDataRights.org
  30. Sherry Reynolds
    Alliance4Health
    “We affirm the above and also believe we have the right to share financially in the sale or secondary use or our data even if de-identified.”
    8 months ago via HealthDataRights.org
  31. Jason Bobe
    Personal Genome Project
    8 months ago via HealthDataRights.org
  32. Ian Kibbe
    8 months ago via HealthDataRights.org
  33. George Church
    PersonalGenomes.org
    8 months ago via HealthDataRights.org
  34. Joshua Seidman
    Center for Information Therapy
    “More support for the Declaration of Health Data Rights http://is.gd/19GCi #myhealthdata”
    8 months ago via HealthDataRights.org
  35. Missy Krasner
    Google Health
    “If people knew what their health data rights were and collectively asserted them, they could make more informed healthcare decisions.”
    8 months ago via HealthDataRights.org
  36. John M. Grohol, Psy.D.
    Psych Central
    8 months ago via HealthDataRights.org
  37. Mohammad Al-Ubaydli, MD
    Patients Know Best
    8 months ago via HealthDataRights.org
  38. Peter Frishauf
    PFKC Ltd. Corp
    “HealthDataRights declaration could help patients without discouraging data SHARING, the most important key to improving care.”
    8 months ago via HealthDataRights.org
  39. John Moore
    Chilmark Research LLC
    “Fundamental to knowledge is information. Giving consumers ready access to their health information is the foundation.”
    8 months ago via HealthDataRights.org
  40. Trisha Torrey
    Every Patient's Advocate
    “RT @cindythroop: #myhealthdata belongs to me before it belongs to anyone else.”
    8 months ago via HealthDataRights.org
  41. Kevin Kelly
    The Quantified Self
    8 months ago via HealthDataRights.org
  42. Philip Marshall MD, MPH
    WebMD
    “WebMD believes that improved access to health information can support more informed health decisions.”
    8 months ago via HealthDataRights.org
  43. Denise Silber
    Basil Strategies
    “Blogging my support in English and French, although most of the declaration is already in French law (law of March 2002)”
    8 months ago via HealthDataRights.org
  44. Steven Krein
    OrganizedWisdom Health
    8 months ago via HealthDataRights.org
  45. Deven McGraw
    Center for Democracy & Technology
    “The law is on our side - but changing the culture which has prevented patients from getting timely access to their data is real challenge.”
    8 months ago via HealthDataRights.org
  46. Unity Stoakes
    OrganizedWisdom Health
    8 months ago via HealthDataRights.org
  47. Ryan Phelan
    DNA Direct
    8 months ago via HealthDataRights.org
  48. Marc Hodosh
    TEDMED
    8 months ago via HealthDataRights.org
  49. Francis Kong
    MedSimple
    “Comprehensive and transparent patient data ownership encourages partnership with your physician in the delivery of outstanding healthcare.”
    8 months ago via HealthDataRights.org
  50. Jack Lord
    Navigenics
    8 months ago via HealthDataRights.org